There is no cure
There is no cure for GSS, nor is there any known treatment to slow the progression of the disease. However, therapies and medication are aimed at treating or slowing down the effects of the symptoms. Their goal is to try to improve the patient's quality of life as much as possible. Despite there being no cure for GSS, it is possible to undergo testing for the presence of the underlying genetic mutation. Testing for GSS involves a blood and DNA examination in order to attempt to detect the mutated gene at certain codons. If the genetic mutation is present, the patient will eventually be affected by GSS, and, due to the genetic nature of the disease, the offspring of the patient are predisposed to a higher risk of inheriting the mutation
Prognosis
GSS progresses very slowly, lasting anywhere form 2 to 10 years, but on average, people with the disease live about 5 years with it. This crippling disease causes severe disability in a patient until they progress into a coma and eventually death. Some patients will also suffer from secondary infections due to an inhibited ability to swallow. Sadly 100% of the people with this disease become victims. Thankfully only about 5 people in 100 million actually get infected every year.